Just in case you missed it, and would like to watch, here is the segment they put together on Jake for Thursday's Hero.  They did a great job... it was a day we will all always remember.

http://www.youtube.com/watch?v=Vqa8iuEYjsg

Finally!!!

We finally got our bone marrow results back from the 100 day post transplant workup.  And we could not be happier with the way things came back!  His chimerism in his marrow and blood was at 100%, meaning 100% of his bone marrow is now Cole's.  There were NO leukemia cells present.  And his bacteria fighting cells (can't remember the name, so if anyone knows, let me know!) were at 60%.  A normal child's are usually at 70-80%.  Our doctor told us this is the highest she has ever seen in a child this soon after transplant!  SO. SO. SO. Excited.   His central line is coming out on thursday, which he has been dancing around about all afternoon.  His ANC was at 2600.  Magnesium levels were normal, kidney functioning normal.  The only slight concern is his liver still.  It's functioning level is still a little low, but we will just continue to watch it closely.  Can you believe it?!  We are still on cloud nine about how good the results came back.  Thank you so much for all the prayers that are continually sent his way.  Every night in his prayers he says the same thing.  "thank you for all of the blessings that we have received throughout this very difficult journey, and please allow us to continue to receive those blessings."  Pretty sure he is a 25 year old in a nine year old's body sometimes.  But it is so true.  The blessings continue to pour in on a daily basis and I know a lot of it is because of the prayers and thoughts and generosity of all those that surround us.  It has been a very humbling and long year.  I am sure this kiddo will keep on fighting until we can fight no more.  Love him.  Love his quirky personality.  Love his stubbornness.  He does not give up on anything.  Especially on something that he wants.  And he has wanted more than anything to put this behind him.   We are another step closer and on our way! Congrats Jake!  xoxoxo

Thursday's Hero on tv

I forgot to mention yesterday, that Jake's day at BYU will be airing tomorrow!  It is on the BYU tv channel the hour before the BYU/ UTAH game kicks off if you would like to watch.  We are pretty excited to see it!
xoxoxo

day 120

I have been bad at posting lately!  I think I have started about ten different posts and never get around to finishing them.  Just wanted to quickly update on Jake.  He had clinic yesterday.  It was supposed to be our "sit down and meet with the oncologist and figure out where we are going from here" appointment.  Unfortunately, it did not happen.  I am not sure where the doctor was, but we were given no results back from his bone marrow aspirate two weeks ago.  It is a little frustrating.  We have to wait another week until he can sit down with us.  We were told that there is a good chance his central line can come out next week.  They cut his fluids back again and if his magnesium levels look okay, they will pull it out!  ANC was 2600.  Everything else looked good.  His liver functioning is a little low, but hoping it is only from a cold his body is fighting right now.  So.  Waiting. Waiting. Waiting.  It is the worst.  But we feel good about things.  And have every hope that everything comes back positively.

Cure Search Walk

For those of you who are planning on attending the walk on the 29th with us and would like a tshirt, we need to know sizes no later than TOMORROW!  We have to have the order in on wednesday.  Please email me your size at hjamieson@mac.com, or else leave a message on the blog.  Tshirts are $5.00.  Thank you!!

short update on Jake:

We had clinic last wednesday.  It was his 100 day bone marrow aspirate work up.  Unfortunately, we will not have results back for two weeks.  At that time, we will sit down with his oncologist and go over all of his results and where to go from there.  The waiting is the worst part!  But, we have this week off and do not have to go to clinic, which is a huge treat!  They have started tapering his prograff and they also cut his fluids in half.  If he continues to do well over the next couple of weeks and his magnesium levels do not drop, we can hopefully get his line removed.  We did get his blood results back.  They came back very very good.  His chimerism, which is the percentage of Cole's bone marrow to Jake's came back at 100%!  Which means, that Cole's marrow has completely taken over.   His liver functioning is normal as well.  And now.  We wait.  Again.  It is hard not knowing, but we have every hope that things will be good.  He is such a good kid.  I know I have said it before, but it is so fun to be able to have him be a kid.  He has been riding his bike and jumping on the tramp and even running every once in awhile.  Love him.  He is a brave little stink.  And we are so proud of him.