update

Just thought I would give a quick little update. Yesterday was our clinic day. It was at 12 and Jake was scheduled to get another spinal tap at 1 so he couldn't eat. He really enjoyed that! When they tried to access his port at the hospital, they couldn't get any blood to come back out. He really enjoyed having them move the needle around in his port for about 10 minutes!! He screamed the entire time. I don't blame him, the needle is pretty big and they kept pulling it and moving it around. They finally gave him some medicine that cleaned the port out, basically, and about an hour later they got it working. We finally went in at 2 for the spinal tap and that went really well. He got his raspberry and cream cheese danish from Kneaders so he was happy! There was not an increase of white blood cells like last week and all of his levels look really good.
Since yesterday was Jake's "special day" he and I were going to have a camp-out in our backyard. (Cole's in Vegas with Heidi's mom). It rained last night so we built a fort in our front room and camped out there. We told each other super-hero stories and didn't fall asleep until after 10 (don't tell Heidi!!)
We also talked with a gal from Vegas who's daughter is going through the same thing Jakers is. She is also doing really well and responding great to the chemo. It's amazing how these little kids can have their bodies and lives turned upside down and still do so well. Jake and this other little girl have such great spirits and truly know what they are going through. Jake has been so sweet lately and, although he HATES Tuesdays, has done such a good job going to the hospital and taking his medicine. We just feel so grateful at how our little family is continually being blessed. Again, thanks for all the support.