DAY 100

Yesterday marked 100 days since Jake's transplant.  Hooray!  He has been praying every night for day 100 to come quickly.  And it really has.  It has seemed like we have been doing this forever, but looking back it kinda feels like a dream.  I cannot believe it has been seven months since we found out about his relapse. 

As much hype as there is about day 100, not a lot changes.  They did his 100 day blood work last week which we will get the results back next week on.  It will tell us the percentage of Cole's bone marrow to Jake's and a few other things I am not sure of.   (Jeff took him to that appointment and so I am not sure what else they are testing for.)  Depending on his blood work, they may start tapering him off of his anti rejection meds.  We are also hoping we can stop fluids at night and in the next couple of months we can take out that darn central line!  He should be able to start eating at restaurants again, which he is so excited about.  The boy loves to eat out.  (He is an expensive child.)  Next week he will also have another bone marrow biopsy and lumbar puncture.  

He is doing SO good. We could not be happier with the way things are going right now.  It is so fun to be able to see him actually be a kid.  He is starting to be able to run and play, although he tires very easily still.  He has gained back all of the weight he has lost and is starting to look like any other kid.  It makes us so happy!