Wednesday, April 23, 2008

last post from the hospital....I hope

Well, this could be it from the hospital for this stay.  Jake has to get a pretty painful shot tomorrow and if he doesn't have a bad reaction to it he can go home tomorrow afternoon.  We are hopeful.  Today was a pretty good day.  We went to the pill form for his medicine and had a little more luck with that.  However, we now have like 7 pills he has to take and he hasn't had the appetite for that...so we've put like 3 pills in one bite of his bagel or mac and cheese.  He will chew it and will look at me like, "there is something wrong with this food."  It's pretty funny.  He is such a good kid.  Lots of yelling, but he really is special.  The steroids have really kicked in and we have had a few laughs at his reactions.  We recorded him today just so he would know we aren't making this up!  All in all it was a pretty good day.  
We had lots of fun visitors today.  We sure do appreciate the love and support we have received.  We are hopeful Jakers will do well tomorrow and we can go home.  The big worry is if he gets sick.  The odds of him having to come back to the hospital if he gets sick are pretty high.  So, we are probably not going to be able to have families or kids over to the house.  Mom's and dad's can come, but we just can't risk kids carrying something they got from someone at school.  We sure hope this doesn't sound bad, but we can't really risk it.  There are too many variables from his blood not clotting very well to him not being able to eat certain foods to him not being able to fight any sort of illness.  We are going to see how he does but for the next 6 months or so, we will probably be a little over protective.  We hope everyone understands we do appreciate your love and support and we don't want to hurt anyone's feelings, but for the next bit we just can't risk it.  Everyone, including all family members will have to scrub their hands when they come in.  We just have to have a very sanitary environment.  I think I have beat that point down.
Anyhow, we are excited to see how things go at home.  Obviously, we are pretty nervous to bring him home because we just don't know what the future holds for us.  Again, we have so much support from family and friends and we are so grateful for it.

10 comments:

Karly said...

YAY! I hope you can come home and bring the little guy to the familiar environment even if it means no visitors!
If children have the ability to ignore all odds and percentages, then maybe we can all learn from them. When you think about it, what other choice is there but to hope? We have two options, medically and emotionally: give up, or fight like hell. ~Lance Armstrong


LOVE YOU GUYS!!!

BS and the Kids said...

That is great you get to come home. It is so nice to get to return to some normalcy and to get back in to return. We will cross our fingers for you.

Dave and Tara said...

Such great news-Let us know what we can do to help without making things worse or causing you more stress.
Tara

ChrisAndJack said...

Hooray! Even though it's scary to leave the hospital, there is something so overwhelming and tiring about all the monitors and the constant check ups and the unfamiliar setting. It'll be SO good for all of you to be home! I'm so excited that he doesn't have to be there anymore. And it is OKAY to be a nazi about sterilization. You have every right (and obligation) to be. We were tempted to set masks by the front door with Olivia. Everyone will understand completely. I hope his shot goes okay - as good as a shot can go. We are thinking about you guys constantly! We love you!

Kristin said...

Can't wait to see you guys again, even if its just a wave in the car. Oh wait, I forgot, heidi doesn't look at people or wave when she drives! We miss you!

McKinlay Family said...

We love you and are so amazed at your strength. Good luck coming home, we will bring Jakers lots of treats, but just drop them off at the door. Lauren and Ethan ask about him everyday, you are very loved.

Tori said...

I was so sad to hear about Jake. I just wanted to let you know that I am here if you need anything. I am sure that a lot of people have told you that but...really let me know.

kto1s said...

Heidi & family--
I just wanted to drop a line to let you know you are also in our thoughts and prayers. Add us to the list of doing ANYTHING to help out.
love--Katie (Irion) Owens (small blogging world--glad I found you!)

Ashlee Andersen said...

Our prayers are with you guys, We love you.
Casey, Ashlee, Ty and Logan

Kris said...

Hey guys! Glad Jake is home and you all are recuperating together at home.Your posts have been great and informative...You know how anna relays messages! Your last post was a definite must and one that everyone should consider and adhere too. Even family. Tell Jake and Cole to watch the mail for a special package coming their way from their cousins and grandma Reese. Love ya!